It could be argued I am a pretty fearless person. The medical examinations, treatments, and scrutiny that I have undergone for years has made me tougher and braver than most. I do not say this as a brag, I say this simply as an observation as I have grown up. Read more…
A recurring theme in my book “Sacred Lives: the history, cultural associations and social impact of epilepsy” is the relative invisibility of contemporary “celebrities” to champion their epilepsy and its cause. We should celebrate those who have been prepared to do so but also ask ourselves why their numbers are Read more…
My daughter, Vivien, started having seizures at the age of two. My wife and I were crushed. Our sweet child didn’t deserve to have Epilepsy. No one deserves to have Epilepsy. It took many years for doctors to figure out that she had suffered a fetal stroke. Her brain did Read more…
We wanted to let you how much fun we had celebrating Epilepsy Awareness Month this year. Like all things in 2020, this November was different. Our goal at Brain Ablaze was to get the word out about Epilepsy and seizures using every tool we had available. Support Our biggest contribution Read more…
An EEG (or electroencephalogram) is one of the first tests that we go through after experiencing a seizure. Small sensors (or electrodes) are attached to our scalp to measure electrical current in different portions of our brains. Hopefully, the data attained can be used by our medical team to determine Read more…
Many of you have reached out to learn what will happen to our Epilepsy Support Group sessions after Epilepsy Awareness Month ends. We want to answer some of the basic questions that have already been asked about our plans moving ahead. Will You Continue the Sessions? Yes, absolutely. We know Read more…
Because I have had epilepsy for 15 years, I know that having intractable epilepsy, or really any type of epilepsy is debilitating. It is a loss of control of the one thing you were promised to have control over: your body. You have a seizure, you take medicine, you have Read more…
I love words. I find it interesting how our chosen lifestyles, our culture/religion, our environment and what life throws at us creates the landscape of our individual vernacular. I love the fascinating way children learn language, how their interests drive their ever growing vocabulary. I’m not good at learning new Read more…
This article was originally posted on Instagram. Thirty years ago, for Halloween 1990, I was a Dead Punk Bride. I wasn’t much of a drinker but that night I had two mixed drinks. The next morning I had my first seizure. I was 21 years old, barely an adult. Five Read more…
Have you ever wanted your name in lights or everyone to recognize you when you walk down the street? Unfortunately, we can’t deliver either. However, we can immortalize your words in a shirt (and other products) in our store. In celebration of Epilepsy Awareness Month, Novela Neurotech is offering a Read more…