Every superhero often finds their superpowers, in some ways, work against them. So, I’m just going to come right out and say it, at times epilepsy really sucks. There, it’s done. But it’s most definitely not over. If it was, I’ve just written the world’s shortest blog post (well, it’s Read more…
When I think of Goldilocks, I think of the golden-haired-furniture-destroying-burglar from the fairy story who wasn’t prepared to settle. When Papa Bear’s porridge wasn’t for her, she moved onto Mama Bear’s. When she found that not exactly to her taste, she abandoned it mid-spoonful, and moved onto Baby Bear’s porridge. Read more…
I woke up this morning with a headache, it wasn’t a big deal and it went away after I took regular, straightforward over-the-counter painkillers. When I showered, I found a very tender, and extremely large bump on the back of my head. Immediately I started joining dots together and the Read more…
Each year from May 20-26, the United States of America celebrates National Epilepsy Awareness Week. While this year, current events kept the celebration virtual and a bit subdued, we still went all out raising Epilepsy Awareness on our Twitter feed. For those of you that missed it, we wanted to Read more…
If you haven’t heard of the #SeizureChallenge it is a Tik Tok fad that has people (mostly teens) uploading videos that include mock performances of convulsive seizures. The Epilepsy community is not offended by videos about seizures. We know seizures. We live with them every day. Instead, we are offended Read more…
My husband David has had seizures since his teens. We have been together for a quarter-century which gave me a front seat. The most dramatic experience was the life-threatening Status Epilepticus he went through. I hope that this will give you a glimpse into what it’s like for those of Read more…
Meg doesn’t have Epilepsy, but it is the story of her interaction with a person that does that caught my attention. Here is her original thread on Twitter. Believe me, after you hear her story, you won’t mind that autocorrect changed her tweet’s text of “tonic clonic” to “tonic clinic”. Read more…
We are certainly living in unprecedented times, as more of the population are forced into isolation due to the outbreak of COVID-19. In the past, I’ve advocated that members of the Epilepsy community are well equipped to handle this disaster as a lot of us have experienced living in isolation Read more…
The great enemy of truth is very often not the lie, deliberate, contrived and dishonest, but the myth, persistent, persuasive and unrealistic. John F. Kennedy In 1992, while the world was hypnotized by Billy Ray Cyrus’s Achy Breaky Heart, I had been already diagnosed with Epilepsy for about a year. Read more…
Well, we finally did it. Over 65 million people throughout the world live with Epilepsy. Our hope is that through intelligent conversation about and advocacy of Epilepsy, we at Brain Ablaze can provide information that people won’t find through other existing support structures. We live with Epilepsy. It is part Read more…