If I wasn’t comfortable in a situation, be it in a job, a relationship or a living arrangement (you name it), I’d run. Anything that meant I’d have to confront something about myself that made me even the slightest bit uneasy, I’d pass. I don’t mean I’ve slowly backed away Read more…
In the BrainAblaze podcast ‘Sleep Till Brooklyn’, host, David Clifford, described just how important sleep is, and, more specifically, how vital it is for people with epilepsy. It had already inspired my post this week, and then, in a (harsh but timely) turn of fate, I had a fall. ‘What Read more…
Okay, I’m going to face this head-on. Unusually, my post the ‘Not Working of Benefits‘ did not finish on the positive note that the others have. That’s because life with (and without) epilepsy is erratic and unpredictable. Throw into that mix a dash of instability, a splash of are-you-kidding-me, and Read more…
A few weeks ago we asked our Twitter Community the following question: We’re so happy to finally bring this option to you. How Does Our Store Work? Forty percent (40%) of the profits for each and every product in our store will be donated to Epilepsy Research. The remaining will Read more…
Even though, on paper, this is an awesome benefit, it neglects many people. The UK government has put it in place specifically for people with any disability, illness or mental health condition, yet uses the same application process for everyone. Instantly, they’ve stacked the deck against people with invisible disabilities, or mental health conditions.
I’ve written previously about an episode of my life where anger, frustration and immense loathing of my diagnosis caused me to make a terrible (and dangerous) decision. Without medical advice, I stopped taking my medication and lost almost a year of my life, it’s still a blank spot in my Read more…
I’ve had to accept, and it’s taken practice, that my mysterious sojourns from consciousness into the dark might just involve ‘souvenirs’…
I was talking to my mate, G. and he said, do you wanna hear something strange, Goldilocks? Well, I thought. What girl doesn’t want to do something, see something or hear something strange? And, he said: ‘we met about 5 years ago, yet I’ve known you for longer than you’ve Read more…
Like breakfast and brushing my teeth, epilepsy is something I just ‘do’. Some people paint, some people knit, I ‘epilepsy’. This is not to imply this condition defines me, nothing could be further from the truth. This is to state that every now and again I’m taken over by this Read more…
I’m Goldilocks (every now and then I become Epilepsy Goldilocks); I’m a Superhero; and I’m also a VNS robot. I’d not even heard of a Vagus Nerve Stimulator (VNS) until a bitterly cold, snowy day in London, February 2018. I was at the National Hospital for Neurology and Neurosurgery (NHNN) Read more…