“Oh My Gosh, my life with Seizures has been a roller coaster!” If you haven’t heard this metaphor before, just wait a few months. I promise you, you will. via GIPHY For those that have made this comparison, I ask, “Have you ever seen a person come off a roller Read more…
My daughter started having seizures at the age of two. My wife and I were told by her doctor to contact the Epilepsy Foundation of Los Angeles if we had any questions. Most people are not aware that there are several Epilepsy Foundations. Some are bigger than others. Each state Read more…
I recently came across these notes. On the third year anniversary of my neurosurgery, I thought I would share them. A few months after having resection neurosurgery in 2017, my neurologist asked me to tell my story to the incoming class of students at Stanford Medical School. The theme was Read more…
In this episode, our host, David Clifford, gives an update regarding Brain Ablaze and reluctantly asks for your help. He reveals a vital secret that could affect the future of Brain Ablaze. We Need Your Help Unfortunately, we cannot pay. Everything we do is voluntary to help those with Epilepsy. Read more…
If I wasn’t comfortable in a situation, be it in a job, a relationship or a living arrangement (you name it), I’d run. Anything that meant I’d have to confront something about myself that made me even the slightest bit uneasy, I’d pass. I don’t mean I’ve slowly backed away Read more…
While we feel we can provide the best listening experience for The Brain Ablaze Epilepsy Podcast here on the web, did you know that we’ve expanded everywhere? Social Media In addition to our vibrant community on X (which used to be called Twitter) (at @BrainAblaze), we are also raising awareness Read more…
In the BrainAblaze podcast ‘Sleep Till Brooklyn’, host, David Clifford, described just how important sleep is, and, more specifically, how vital it is for people with epilepsy. It had already inspired my post this week, and then, in a (harsh but timely) turn of fate, I had a fall. ‘What Read more…
Okay, I’m going to face this head-on. Unusually, my post the ‘Not Working of Benefits‘ did not finish on the positive note that the others have. That’s because life with (and without) epilepsy is erratic and unpredictable. Throw into that mix a dash of instability, a splash of are-you-kidding-me, and Read more…
Even though, on paper, this is an awesome benefit, it neglects many people. The UK government has put it in place specifically for people with any disability, illness or mental health condition, yet uses the same application process for everyone. Instantly, they’ve stacked the deck against people with invisible disabilities, or mental health conditions.
I’ve written previously about an episode of my life where anger, frustration and immense loathing of my diagnosis caused me to make a terrible (and dangerous) decision. Without medical advice, I stopped taking my medication and lost almost a year of my life, it’s still a blank spot in my Read more…