Every one of us must adapt to our Epilepsy and the seizures it causes. It is a brutal process, but with the right attitude, perseverance, and luck we can solve our own puzzle and attain our goals. We guarantee it! We will always have people in our corners and people Read more…
In this,, our last episode on our current series on Stigma, We go across the world to learn what to do when stigma hits close to home. Our friend, Peter Meyer, tells us of his secret life with Epilepsy and the lengths to which his family went to hide it Read more…
In this episode, we continue our Stigma series to talk through the different types of people that we often encounter when trying to fight against Stigma and give advice on how best to interact with them. Each person is different of course, but we often find that that there are Read more…
I’ve had to accept, and it’s taken practice, that my mysterious sojourns from consciousness into the dark might just involve ‘souvenirs’…
In this episode, our host and longtime intractable epilepsy sufferer, David Clifford takes us back to 1983 to tell a story of when his own stigma against others changed the path of his own life. So pop your collar and grab your jellies, because we’re in for an awesome ride. Read more…
Like breakfast and brushing my teeth, epilepsy is something I just ‘do’. Some people paint, some people knit, I ‘epilepsy’. This is not to imply this condition defines me, nothing could be further from the truth. This is to state that every now and again I’m taken over by this Read more…
I’m Goldilocks (every now and then I become Epilepsy Goldilocks); I’m a Superhero; and I’m also a VNS robot. I’d not even heard of a Vagus Nerve Stimulator (VNS) until a bitterly cold, snowy day in London, February 2018. I was at the National Hospital for Neurology and Neurosurgery (NHNN) Read more…
Every superhero often finds their superpowers, in some ways, work against them. So, I’m just going to come right out and say it, at times epilepsy really sucks. There, it’s done. But it’s most definitely not over. If it was, I’ve just written the world’s shortest blog post (well, it’s Read more…
When I think of Goldilocks, I think of the golden-haired-furniture-destroying-burglar from the fairy story who wasn’t prepared to settle. When Papa Bear’s porridge wasn’t for her, she moved onto Mama Bear’s. When she found that not exactly to her taste, she abandoned it mid-spoonful, and moved onto Baby Bear’s porridge. Read more…
Each year from May 20-26, the United States of America celebrates National Epilepsy Awareness Week. While this year, current events kept the celebration virtual and a bit subdued, we still went all out raising Epilepsy Awareness on our Twitter feed. For those of you that missed it, we wanted to Read more…