I would like to thank everyone who read my last blog. I truly appreciate everyone’s comments. My intention was not to upset anyone but apparently, that’s what I did. I knew someone would be angry, but I decided that it needed to be said. Maybe I wasn’t clear enough. I tried to explain that The Epilepsy Foundation of Los Angeles has done nothing to help my family.
My reason for writing the blog was to bring awareness to a broken system.
I felt a need to follow up on my first blog. I would like to start by answering some of the questions I received.
- Why don’t you just hire an attorney?
I have done that, but attorneys cost a lot of money, and they take a lot of time. I currently have a lawsuit that has been going on for five years.
- Why don’t you teach the children at your daughter’s school about Epilepsy?
I have. My wife and I have done that since my daughter was in pre-school. She is in 7th grade now. She has attended multiple schools. The problem is that only one class gets taught while the rest of the school is unaware that there is a student with Epilepsy on the campus.
- Has the Epilepsy Foundation of Los Angeles every helped you?
Sadly, the answer is no. I have reached out to the Epilepsy Foundation of Los Angeles many times throughout the past 11 years. They are 501(c) non-profit, and their purpose is to raise money.
I was hesitant to write the last blog. However, the angry replies had nothing to do with what I wrote. I know most were trying to be helpful. However, a lot of the responses were passive-aggressive. One response was, “the Epilepsy Foundation of San Fransico is wonderful, and I have never had any problems with San Francisco.”
I was writing about the Epilepsy Foundation of Los Angeles and never said anything about San Fransico.
Another person wrote, “the Epilepsy Foundation of America has a new president, so maybe things will change.”
Again the problem is with the Epilepsy Foundation of Los Angeles. These replies showed a knee jerk reaction that has become normal on social media.
My family goes to the Children’s Hospital of Los Angeles. If I have a problem, the doctors refer me to the Epilepsy Foundation of Los Angeles. They never refer me to Orange County or the Epilepsy Foundation of San Francisco.
I would like the Epilepsy Foundation of Los Angeles to succeed, but we need to challenge these institutions. The foundations aren’t the problem; it’s the people that are in charge of them.
To quote Gandhi, “Be the change that you wish to see in the world.”
© 2020 Mike Knox All Rights Reserved
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